On November
2, 2003, when I was 13, I was diagnosed with brain cancer. If you’re curious on
the type, it was a pilocytic astrocytoma. The tumor was so large that they
operated on the very next day of finding it. It was 8x6x6cm on the left side of
my brain. The first operation was 14 hours long. Besides the fact that I had a
massive tumor, my body was in great health, thankfully.
The main
side-effects were blindness in the right half of each eye, aphasia (the loss of
speech and comprehending language), short term memory loss, cognitive thinking challenges,
and I fell back to a 3rd grade reading level.
Roughly 6
months after the 1st brain surgery we found a cyst growing and
taking the space of the original tumor. We continued to watch the cyst for
another year and a half in hopes of it going down, but it didn’t. I had the
strong impression that we needed to operate again to remove it all. The doctors
agreed and on December 13, 2005 we operated again. They were able to remove it
all and I’ve been cancer free ever since, but there was similar side-effects
like the first surgery. Within an hour after my second brain surgery, I had a
stroke which let me paralyzed on the right side of my body. Thankfully, I was
able to regain almost all major movement within a year.
A lot has happened
since these 2 surgeries. My epilepsy is still lingering and that is what I am
trying to control now. I'd like to share my experiences that are going on now and ones from the past.
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